New file uploaded to cml2

2006-07-31 23:07:25

Hello,
This email message is a notification to let you know that
a file has been uploaded to the Files area of the cml2
group.
File : /Scott and Kimmy's poem.doc
Uploaded by : nnbaddog <nnbaddog@...
Description : I will always remember Sunshinekimmy0911, fought so very hard,
she passed in 2004, and will always live in my heart. we wrote this pome
together one day. I wanted to share it with the group.
You can access this file at the URL:

zavie sent me

2006-07-31 16:01:04

hello hello,
just dropped in to see whats here.
yo

All About Me

2006-07-31 13:48:50

Hey Group:
Thanx again Amy for starting this site, I believe this is the one

Re: Important Dates to Remember

2006-07-30 23:04:59

Hi Cheryl Anne
I have registered for the CML webcast, assume 2pm is Canadian time,
so should be, I think, 8pm UK time. Have put it in my diary.
Thanks
Annette

Introduction - Richard

2006-07-30 18:41:34

Hi all,
Found my way here.... thank you John for the direction and thank you
Amy for setting this group up - glad to see familiar names on here
and also some new ones.
Briefly, my husband, Richard, was diagnosed with cml in May 2003
with a wbc of 450,000 and platelets of 900,000. Leukapheresis, then
hydrea, then a fight to get Glivec (UK sp)as our health people had
not approved it then for newly diagnosed..... Glivec August 2003 (we
won, but that is a story in itself).
BMB Nov. 03 - PH+ down to 60% from 100% = what joy!
BMB Feb. 04 - PH+ up to 75%, increase Glivec to 600mgd
BMB May 04 - PH+ up to 100% = what panic! - Transplant advised as
only course of action left... switched doctors ...increased Glivec
to 800mgd and mutation testing carried out.
Blood counts start to rise - consider BMS Phase 1 Trial in Houston,
but Richard did not get the second wbc of 15,000 or more to qualify.
Discovered Rich had the M244V P Loop mutation - increase Glivec to
1000mgd. Blood counts normalised for a month, then platelets started
to increase.
Stopped Glivec September 2004 and back on to Hydrea - awaiting BMS
Phase 2 Trial starting in London and, at present, juggling Hydrea
dose in line with weekly blood counts.....
Mutation test repeated in December 2004, M244V still present.
Awaiting mutation test result from January test.
Just heard yesterday that there are still "ethics committee"
problems with BMS Trial wording, so we may be off to France or
Germany if they don't resolve these soon. Next appointment in
London on 30 March.
Did I say "briefly".... sorry.....
Richard is one of a minority who have a P loop mutation which is
resistant to Glivec. We are sure BMS will do the job for him.
Best to all
Annette

Re: Bob's results

2006-07-30 14:00:30

Hi Nancy
So pleased to hear Bob is still pcru and feeling well after his
surgery. Hoping the docs can sort out the high platelets soon.
Keeping you both in prayer
Love
Annette and Richard
UK

Re: [cml 2] Bob's results

2006-07-30 11:31:49

Hi Nancy.........
Great news about Bob's latest bmb results.
For those who might not know.....Bob is in the phase 1 BMS trial....
and Nancy, wasn't he the first to reach pcru? This is great results
for the new drug and for our 'former turtle' friend.
I can't really help you about the monocytes. Is this just a
small elevation above the normal range? If so, Dr. Druker
always says it is not a concern. With his recent surgery,
maybe that has something to do with it. I am really glad
to hear the Bob is feeling well again. Now the doc can
get back to figuring out the high platelets. Please let us
know what you learn. Glad you are joining us here.
Nancy C.

Bob's results

2006-07-30 05:20:36

Hello, nice folks,
So good to see so many posting here!
Good news today. Bob is still PCRU and FISH was zero out of 524.
Thank you, God. But his platelets are back up. I guess the 6 units
of blood he got has run out and now his platelets are taking over
again.
Nancy C, Tracey, whoever??? What do high monocytes indicate? I
really don't need anything else to worry about, but why not!!
Bob is feeling much better since his surgery and is eating well and
sleeping well. As long as he stays in PRCU I will be grateful.
Take care all.
blessed be nancy w inyokern ca

Hello Everyone

2006-07-29 19:16:02

Hi everyone,
First off, thank you Amy for starting up this CML2 site. I
appreciate it very much.
Just to give a bit of backgroud on myself...
My name is Lynn and I'm married, 42 and a stay at home Mom of two
daughters age 5 and 8. I was dx'd on 12/10/03 after many months of
being sick, but seemingly going under the radar with my dr's. They
were treating symptoms, but just didn't run a simple blood test.
They even checked my thyroid but tested nothing else. ugg. I had
been having off and on night sweats, and a chronic cough that would
not go away. Dr's treated me with antibiotics for so called "Walking
pneumonia".. bronchitis... but nothing worked. I was exhausted!
Then, one day, I dropped the soap in the shower, and when I leaned
down to pick it up, I felt hard on my left torso. I also palpated my
torso laying down, and things were not normal. That same week, I had
scheduled a annual Pap exam,, so I figured, I wasn't getting anywhere
with the reg drs... I'd just bring it up to the OB/GYN! When I
showed her my problem, she turned white and nearly fell over! She
called and scheduled a CT Scan, but still no bloodwork order. It was
after the ct Scan came back with a massive spleen, that the
Oncologist that she was going to refer me to demanded that I have a
bloodworkup STAT, and then I was off to go get a Bone Marrow Biospy.
Two hours later, I met my Oncologist, and we were already getting the
preliminary results in of the Biopsy. I ended up landing in the
hospital for 3 days to stablize and to receive 2 units of packed red
cells. For the first time in many months, I felt like a new person
with those new red cells! My white count was 305,000 and almost
everything else on the bloodwork was out of whack too! I was 100%
Philly + but less than 2% blasts.
After the encouragement of many members of the CML support group (you
know who you are :-) , I ended up firing my first Hem/Onc because he
was extremely unsupportive and did not want me to learn anything
about CML. He just wanted me to get the transplant, and scoulded me
continuously for reaching out to others for help on the internet. He
had no faith in Gleevec, but I responded incredibly well. He just
rolled his eyes!
I live in WA State, and went ahead with a transplant consult at the
Fred Hutchinson to learn about my options. Both my brothers were HLA
tissue typed and neither one was a match.. one was 3/6 antigens,,,
one was 0/0 (blood brother too). I had 5 potential donors at the
time, but nothing specific about their match.
I put my faith into Gleevec, and made a choice to live with quality
rather than quantity if necessary, and just decided to see where the
Gleevec road took me. I"m glad I did.
I reponded well and my high white count returned to normal within a
month or so. After the 6 month point, and had reached a Partial
response. Then, at the 9 month point, I had 0 Phillies, 0/300 Fish,
and PCR Undetectible with 100,000. I continue to have normal
counts and am PCRU.
Since that time, I have continued with 400 mg Gleevec. I have a few
side effects, but I think of the alternative, and anything is better
than that!
I am extremely fortunate and I am so lucky to have met such a
wonderful group of caring individuals on the CML support boards. I
am blessed everyday, and am finally able to move on without thinking
about it 24/7. My life is good. I have learned not to beat myself up
over this and I finally stopped apologizing to my hubby and girls for
getting this disease. Mom's aren't supposed to get sick,, especially
when the kids are little, right?
So, that is my story in a nutshell, with a lot of stories in
between. I look forward to getting to know the new members and I
love the old ones too!
Take Care,
Lynn (Snickersunny).. Snickers is 15 year old black and tan tabby cat
that I"ve longer than my hubby, Pete
Sunny is a 12 year old fluffy orange tabby
Zavie 0 Club #692

Re: [cml 2] what condition my condition is in.

2006-07-29 10:46:05

Hi Group,
I want to say that I am very glad that we have 'new' voices
speaking up on this list.....and I hope this will be a list for
everyone. Professionally, I instructed others in medical care
for over 30 years, so it is 2nd nature for me. I retired as a
physical therapist just last year. I will do an introduction to
the group later, but I want to address some of Scott's IM
side effects or other concerns:
1. blood in the urine...and urinary urgency.....I would ask the
doctor to do a work-up again, with the information about the
urgency, sometimes poor control and the pain in your side.
I think Tracey offered you some good suggestions. This doesn't
sound like it is related to CML or Gleevec?? but could be if
all else checks out normal (in medicine this is called 'ruling out
other causes''.) I will tell you that I had a very unusual deep eye
bleed (remember these Margot) and when I asked Dr.Druker if
he thought that Gleevec was the cause, even though it is not
a typical problem......he said "yes, Gleevec is known to cause
hemorrhage". So, Gleevec can be the cause of some unusual
bleeding, but it also seems to not create a big problem when it
does.
2. Gleevec and tummy issues.....you seem to have more than
your share of this side effect. I am pretty strong into complementary
medicine and work with a naturopath. Gleevec is an acid drug and
I think especially for those prone to the GI problems, it is worth
trying an alkaline diet to offset the acidity of Gleevec. Such a diet
is less meat....more veggies, fruits, etc. There are a couple simple
things to experiment with to see if this might help at all. Squeezing
fresh lemon or lime into your drinking water is very alkaline. Also,
right now I am finding nice little watermelons....they are alkaline.
Anything with 'greens' is alkaline......there are many supplement
options, like barley greens, etc. Juicing of veggies can be a big help.
I don't think we can be on Gleevec for years without doing something
to offset the acidity of the drug.
My own history here is that I was on 400mg for just over a year and
have been on 800mg for about 3.5 years.....and I know that I have
to juice or get alkaline foods in some way.
3. Scott, you are not alone with the memory or concentration issue.
It seems to be a Gleevec side effect.....and about all you can do is
have the little lists to keep track of things.
4. the watery eyes.....my opthalmologist told me to use Vicine AC
every morning....it is a decongestant and seems to help. When he
tested tear formation, it was about 3 x normal. With Gleevec, they
talk about 'small vessel leakage' so I think this is also creating the
watery eyes.
5. a rash can be common with Gleevec......you might try a cortisone
ointment for this and see how it responds. It is an Rx, so you need
someone to write it up for you.............
Triamcinolone acetonide ointment 0.1% has been approved for this.
6. I know what you mean about being so pale! I say that my hands look
'morgue white'. I do find that I slowly get some color....so maybe a walk
in the AM sunshine would help. If it bothers you a lot and interferes with
being more social, you could use a make-up made for medical conditions.
7. Fatigue....I think a key thing is to learn to adjust your expectations and
do small amounts of work at a time. Dr. Druker recently said that the
fatigue can be from some anemia (so check the hgb and hct) or is just
a side effect of the drug. You can experiment with when you take Gleevec.
If you don't already, you could try taking Gleevec with dinner, and see if you
can sleep off some of the side effects. Or you could try splitting the dose
and taking it twice a day? different options work for different people.
8. As Tracey mentioned, if the drug you are taking for depression doesn't
seem to be helping that much, you might try another one. Also, getting
some exercise can really help with depression.
Hope some of this might be helpful......
and thanks for sharing with the group Scott and getting some discussion
going. Everyone has something to add to our 'pot of knowledge'.
Nancy C. or Maui Nanc

Re: Hi to the group

2006-07-29 09:38:50

Hi Trisha,
Your post is so warm and inspiring! Thank you for sharing your
story with us.
It's funny, some of us have been here so long that we start to
forget some of the histories of the older members and it's so great
to hear them again.
Your story is bound to inspire many, it sure inspires me!
Take care,
Tracey

Re: [cml 2] CML2

2006-07-29 06:46:12

Yesss, Maui Nanc, later I did get the connection and posted in the

Test

2006-07-28 20:34:49

Test

Tracking Treatment

2006-07-28 17:02:13

CML Medical Monitor Newsletter
CML Medical Monitor Newsletter
March 2005
The CML Medical Monitor was developed to help people living with
chronic myeloid leukemia keep track of their symptoms and treatment
progress. It was designed in collaboration with CML medical experts and
patients like you. We want you to get the most you can out of this valuable
resource, so we thought we would highlight some of the features of the
tracking tool.
In the Ask the Experts feature of the CML Medical Monitor, you can
email your CML questions to our faculty members for timely, personalized
responses. Here is an example of one recent question-and-answer exchange:
Q: When and why do I have to have bone marrow biopsies?
A: How often you have a bone marrow biopsy will be determined by your
doctor based on the stage of your disease and your response to treatment.
Almost all patients have a bone marrow biopsy at diagnosis. This confirms
the presence of the Philadelphia chromosome, the stage of the disease and
whether there are any other chromosomal abnormalities. A typical schedule
for someone with chronic phase CML is to have a biopsy six months after
starting GleevecŪ and then at one year. If this biopsy shows that the person
is in cytogenetic remission, then biopsies may be done approximately once a
year to monitor any additional chromosomal changes. Your schedule may vary
depending on your response to treatment. More frequent bone marrows may be
needed if your CML is not in cytogenetic remission, is not responding as
expected to treatment, or is in accelerated phase or blast phase.
In addition, at our center, quantitative PCR is often done on
peripheral blood every three months if possible. The quantitative PCR gives
us a way to track Bcr-Abl levels using either blood or marrow samples.
Carolyn Blasdel, RN, MA, OCN
Clinical Research Nurse, Oregon Health and Science University
To learn more about the monitoring of CML, browse the "Education"
section of the CML Medical Monitor, which features helpful videos on
tracking your treatment progress. And to submit your own anonymous questions
to the expert doctors and nurses on our faculty, go to the Ask the Experts
feature on the the CML Medical Monitor.

Re: thank you Tracey

2006-07-28 10:05:20

Hi Scott,
I'm glad you found my post helpful in some way.
I'm a little concerned that you haven't had a CBC in 6 months and I
think you're right to be concerned too. I wouldn't be comfortable
with anything less than at least every 6 weeks, if you're completely
stable.
Just to show you how fast things can change, I've been on Gleevec
for 3 years and was stable for all that time. Out of the blue, for
no good reason, my counts started to crash. I never had a problem
in all the three years until now.
Of course, my intention isn't to scare you but let you know that you
deserve better and don't settle for a doctor that you aren't happy
with who isn't addressing your issues. Many of us have changed
doctors because we weren't satisfied with the ones we had.
Gleevec does cause bone and joint pain and that may be what's
happening to you. Your chest pain could be anything and should be
investigated. Chest pain is not something to brush off. It's great
that you have Skittles there to help you advocate. Give her my best
regards and keep posting!
Tracey
PS my spelling is probably worse then my kids spelling so no need to
apologize :)

New Member to Group

2006-07-28 08:21:09

I was waiting to hear from anyone but didn't and just found out that

Important Dates to Remember

2006-07-27 21:28:17

Hello Everyone,
If you are looking for inspiration and the opportunity to participate
in two unique events - please take note of the following:
FREE Evening talk by Alan Hobson, world renowned adventurer, Mt.
Everest Summiteer and stem cell transplant survivor - AML dxed in
2000. The title of Alan's talk "Climb Back from Cancer" is his story
of his three attempts on summiting Mt. Everest, finally summiting on
the third try and then being faced with being diagnosed with AML.
Alan tells us that the journey through cancer was much more
challenging than his treks up Mt. Everest. Alan will be sharing many
of the photographs he took on his adventure up Everest. There is one
particular picture that shows him standing on the middle of an
aluminum ladder that is tied into place over a 150 ' crevasse in the
infamous ice fields of Everest where he is tied at the waist and
being guided by Sherpa's and fellow team mates - the parallel to our
own journey is quite amazing!
Alan's talk is taking place on March 17 at 7:00 PM - doors open at
6:30 PM at the Centre Mont-Royal, 2200 Mansfield (corner Sherbrooke)
Montreal, QC. The first 100 patients will received an autographed
copy of Alan's book - Climb Back from Cancer. To register for Alan's
talk just send an e-mail to Alans.talk@...
The next event will be on Saturday March 19, 2005 - The 1st Canadian
Forum for Patients with CML at Centre Mont-Royal, 2200 Mansfield,
Montreal, QC at 2:00 PM - 3:45 PM
Among the many subjects being discussed will be the announcement of
the Canadian Consensus and Guidelines for CML treatment in Canada.
Patients not able to attend in person can participate in the "live"
webcast by registering at:
http://events.startcast.com/events/139/B0001/#
Please register with your real name as any registrations containing
blanks or other obvious bogus information will be deleted.
Hope to see you all at both events!
Cheers,
Cheryl-Anne

thank you Tracey

2006-07-27 15:10:11

Wow ! Teacey thank you for all the info. I have made notes for my
doc ( I will see him next tusday ), you gave me alot of good
questions that i had not thought of before, and I will not let the
doc just push me off this time.
i guess the only thing i can respond to right now is the rash
thingie, Its really just not a big deal,, it dosent hurt or itch, it
just feels like elephant skin, and is not a big deal to me really,
but its there and I wanted to address it. :D
I dont feel like I am getting the best treatment. I say this
because I no longer get regular blood test anymore,, I have not had
a CBC for 6 months, im not comfortable with that i think i should be
monitored more often. i have 2 doctors one is my primary and the
other is my leukemia doc. i cant seem to get either one of them to
address my side effects from the gleevec, ie. I complain about my
bone pain and I was told that i have burcidous in my sholders even
though my done pain is not only in my sholders. AND I had a
tremedous pain in my chest one day ,, I went to my primary doc and I
was told that my chest pain was because my back is out of
addjustment... grrr. I felt like i was just brushed off.
well Skittles (my wife) and I will be alittle more forceful on this
next visit to the doc, and we WILL have these concerns addressed.
thanks CML2 for the being there for me.
hang tough, ttfn, Scott
P.S. Im not good at spelling, please forgive me for that. { It must
be from the gleevec, teeheee )

Hi to the group

2006-07-27 13:12:25

I just wanted to say hello to everyone and give you my CML history.
I was diagnosed on 9/1/99 at the age of 36, after a few months of
trying to figure out why I was having very bad rib pain and horrible
acid refulx (turned out to be sternum pain) My doc did a simple
blood test that showed a white count of 59,000 which led to a very
painful BMB at the local hospital which showed that I was 100% PH+.
I live in a very small town in southeast KS, so my doctor
recommended that I seek treatment in Houston at MDACC. Well, at that
time, the only thing that was mentioned to me was that I would
probably have to have a transplant, and since my parents lived near
St. Louis, I decided to go to Barnes-Jewish hospital for my
treatment so that if I did have transplant, my parents would be
there to help me during that time.
Turns out that none of my 4 siblings are matches so I was started on
daily shots of inteferon (Gleevec was still in trials and known as
STI-571 and I did not qualify for any trials) I shot myself up for
18 months. I traveled the 6 hours to St Louis every 3 months and
hated every minute of it. My doctor did not let me know what was
going on and I did not know what to ask. The place was run very
poorly and it was nothing to have your appointment run 3 to 4 hours
behind.

Re: what condition my condition is in. (giggle)

2006-07-27 01:53:09

Hi Scott,
It's nice to get back to what these lists were designed for, thanks
so much for posting! Let me take a stab at the issues you've been
having.
The blood in the urine doesn't seem to be a common complaint that
I've heard from people on Gleevec. I remember reading one time that
many times when people have blood in their urine, no cause is ever
found. Just the same, I would ask these questions: Are you getting
kidney function tests done routinely? Have you had a PSA and
prostate exam lately? Has anyone ever explored the possibility of a
bladder infection and tried you on anti-biotics? I wouldn't stop
exploring different possibilities until you're satisfied with some
kind of answer.
Your tummy issues are relatively common on Gleevec. Let me ask you
this, are you getting liver tests done regularly? Has anyone
checked you for possible gall bladder problems?
Your memory issues are also quite common with Gleevec users. I
thought my memory was also shot when I started Gleevec (3 years ago)
but then it occured to me that it wasn't actually my memory that was
suffering but my concentration. I couldn't keep a thought process
going or I couldn't do two things at the same time. It can be
difficult to sort through what might be "memory" and what might
be "concentration" but either way, you certainly aren't alone with
this. I'm not aware of anything that helps with it either, sorry.
Your eye issues are very common on Gleevec. My eyes are also
puffy. Some people have found that it helps to sleep with their
head elevated on a higher pillow but I personally haven't found
that. Others have taken a diuretic that has helped but with your
bladder/kidney issues, that might not be a smart thing to do right
now. I find for me, it gets much better as the day goes on but when
I first wake up, I look like I've been in a boxing match. I guess
there's no place for vanity when you have CML :) The watery eyes is
also common. I find if I wipe them with a warm cloth, it helps and
the leaking stops.
How long have you had the rash? Some people develop what they call
a "Gleevec rash". For some it's been serious enough to go on
Prednisone but for others it's just a slight nuisance that they live
with.
The hypopigmentation is VERY common with Gleevec. The reason is
because Gleevec also inhibits an enzyme called c-kit which is used
in the production of melanine. Melanine is what gives us our skin
colour. Unfortunately there isn't anything you can do about this but
you MUST be careful in the sun. Because your skin is lighter, it
can burn easily and you must wear sun screen to protect yourself.
I know exactly what you're talking about with the fatigue issues.
I'm also wiped out most of the time and often take naps. How is
your Hgb? Some people are very anemic on Gleevec and find that
taking Procrit helps. I just found out that I"m low in B-12 so this
might be contributing to the problem. Have you ever had your iron
checked? Some people (like me) can actually have a normal Hgb count
but be low in iron and B-12.
The depression is also common. Dealing with CML is a stressful
thing. I don't know if any direct links have been made with Gleevec
and depression but certainly anyone living with cancer, is bound to
feel depressed sometimes. If you find the Welbutrin isn't doing as
much as it could, ask your doctor to try a different anti-
depressant. There's a myriad of drugs out there that treat
depression and some will work better for some people than others.
It's basically a trial and error thing.
Bottom line is you're not alone!
Take care and thanks for taking the time to post,
Tracey
dx Jan 2002

what condition my condition is in. (giggle)

2006-07-26 22:06:12

First off wanted to say to "K", I love you Sis. I hope you an Paul
are doing well.
Ok now on to the posting ~ I was DX'd june 2000 started gleevec june
2001 @ 400 mg, but I was reduced to 300 mg in Oct 2004.
What condition my condition is in
I don't seem to be able to tell how I feel when I'm seeing the
doctor, and I'm trying to explain my condition this way.
1) Starting with going to the bathroom, I have been having a
problem with this for a long time now,, it started with blood in my
urine I'd say Jan. of 2002, I went to a doctor in Bellingham and he
did a cyctoscopy, he found no reason for the bleeding from his
test. I stopped working at the end of February 2002 and a month
later or so, the bleeding had gone away enough to where I could no
longer see it in my urine, I did have a test for blood again, later
in 2002 and a small amount of blood was found,, (we have never found
the cause of the bleeding and have moved on past looking for it ,,
there are still times however that I do think that I am seeing blood
once again in my urine, it is usually preceded by pain in my sides
just under my rib cage, but it dose not seem to last long. (Now)
this urine problem has also been causing me to loose control with
holding my urine at times, I sometimes feel the need to pee but can
not,, then moments later I will need to hurry to the rest room to
pee., Also,, it often happens now that just out of the blue, I
realize that I need to go pee, and I need to hurry, (I don't always
make it anymore). This is something that I had been thinking is
caused by the meds I take for the leukemia, however it needs to be
known that my grandfather died from blather cancer, and my father
just had his prostrate removed because of cancer in his prostrate.
2) Bad tummy, this seems to be a constant problem for me. The meds
I take for my tummy are Protonix and Hyoscyamin and from the
Hyoscyamin, I seem to get relief from pain for short times,, but I
am taking the pill three to four times a day. The pain moves and is
not always in the same place.. some times it lower left side, or
right/left side just under my ribs. But I only take the pill when
the pain is in the middle of my gut. I hate the pain in my tummy
and it is almost always there. I feel sick to my tummy a lot, and
get sick enough to vomit, not as much as I used to, but its still
happening about three times a week.
3) Memory, or lack of, this is better some days then others , but it
is a problem sometimes,, I have been trying to think more, to use my
mind, but I still seen to always forget things,, Short term things
mostly. I really am tired of always looking for what I just had in
my hand, I often finds that I cant say a complete thought without
forgetting what is was I wanted to say when I started the sentence.
4) My eyes are almost always puffy and reddish around the eye. In
the morning I am having to continually wipe my eyes, until they stop
seeping fluid.
5) Rash and bumps on body,, I have seen these on my chest but it
seems to be worse on my feet.
6) Hypopigmentation (a fifty cent word )- loss of skin coloring. I
see this mostly on my face, although its not painful , it makes me
not want to be seen in public, and it is a constant reminder to me
of my condition.
7) Energy, I try to do things, (ie. House work and some yard work)
and some days are better then others. I get tired easy and I can
only do a little at a time. I have to rest a lot during the day, and
try to have a nap in the afternoon.
8) Depression, I feel down some days but I take welbutrin to help
me, and I think it helps. I have been very depressed in the past and
know what its like to be depressed. I do not think that at this
time , I suffer from depression much more then a otherwise healthy
person would.
Well Im sure there's more that I am forgetting even though I have
been working on this letter for weeks now I still feel like Im
forgetting stuff.
If anyone has sugestions for me, i would be happy to see them.
Hang tough, ttfn, Scott

CML2

2006-07-26 19:40:10

Hey Scott:

Re: [cml 2] hello CML2

2006-07-26 09:39:07

Hi Scott<
I am looking forward to seeing messages from you on this list. You have
a fun sense of humor....youbaddogyou.
Maybe once the list gets up and running, we can all make a little intro-
duction about where we are with cml things.
Maui Nanc

Re: hello CML2

2006-07-26 04:39:14

Hi Scott,
Glad to see you found you way here. I'm not sure how things are
going to go, but let me tell you that there are some great people in
the CML groups. I know that my journey with CML would have been so
difficult with out all the great people that I've come in contact
with. We can get this group up and running and let it be the best it
can be. I don't have a lot of resources for articles and such, but
everyone has to start somewhere. Glad your here!
Amy B.

HI

2006-07-25 20:37:56

Hi Everyone, and welcome to the CML Group. I hope we can make this

hello CML2

2006-07-25 20:01:14

Hi, Im Scott (Skiwatt) or you can just call me nonobaddog,, lol
Dx 'd june 2000, on gleevec june 2001, Im doing alright, I seem to
have alot of side effects from the meds or the leukemia, not really
sure what its from really. I hope this will be a wonderful group,
who knows maybe I well feel comfortable enough to post more
messages,, but be sure that i will be reading messages everyday {big
smile}. I dont have questions right now about CML, I am mostly just
looking for friendships and suport,, and in return I will give back
friendship and suport. It was my dear sweet wife that got me into
looking for suport on line, because she knew how alone I felt. Sence
that time i have made some real good friends, and i have lost some
too, but i will never be able to forget all that they have ment to
me ,, ohcrap,, got myself all teared up again. ,, well, just wanted
to say hello . Hang tough, Scott